An ultra-rare fight. An unstoppable kid.
Fix Itfor Felix
Felix is fighting an ultra-rare mitochondrial disease. We're making sure he doesn't fight it alone.
Meet Felix
He is four years old. He is stubborn about the important things, generous with his laugh, and completely obsessed with anything that has wheels. He is also so much more than a diagnosis.
A big personality in a small body
Felix is a big-hearted, curious, and wonderfully silly little guy who loves anything Pop Pop does, cozy cuddles, and making his sister laugh. He's happiest caring for his pets, staying busy at his workbench, dreaming up inventions, and grooving to music on the record player. He loves animals, Spidey, and anything with wheels — always eager to be right in the middle of the action, doing as much as his body allows.
COX20-related mitochondrial complex IV deficiency
Felix has COX20-related mitochondrial complex IV deficiency, an ultra-rare, progressive, genetic disorder that affects the mitochondria's ability to produce energy. For Felix, this has resulted in an unsteady gait, mobility, balance, and coordination challenges, as well as difficulties with articulation and swallowing.
Fewer than 40
cases have been documented in medical literature.
Ordinary days that take extraordinary effort
For Felix, everyday activities require far more effort than they appear. Walking, navigating stairs, keeping his balance, getting dressed, playing, and keeping up with his family can take significant concentration and energy. He works incredibly hard to stay active and independent, but his mobility, balance, and coordination challenges mean that things many children do without thinking can be difficult for him.
What we're fighting for
Every dollar helps Felix fight
Some patients with COX20-related disease progress to using wheelchairs and communicating mainly through a tablet. That is what we're fighting against — so Felix can stay strong, mobile, independent, and able to do all the things he loves.
- 01
Therapy
Ongoing physical, speech, and occupational therapy — plus intensive out-of-state sessions — to keep Felix strong and communicating.
- 02
A service dog
A service dog carefully trained over the next two years to provide mobility support and help Felix with everyday tasks.
- 03
Mobility & equipment
Specialized orthotics such as AFOs, mitochondrial supplements, and adaptive safety equipment for daily independence.
- 04
Specialized care
Countless appointments and travel to CHOP for specialized care that only a few teams in the country can provide.
- 05
A safer home & the future
Transition-free flooring, a continuous stair banister, and a walk-in shower — while supporting gene therapy research at UMass.
In Felix's corner
Put something in Felix's corner today
Your support helps Felix's family put more resources toward his care, therapy, equipment, accessibility, and everyday needs.
Donations powered by SupportNow
Wear the fight
Shop for Felix
Proceeds from Fix It for Felix merchandise support Felix and his family. Every tee, hoodie, and hat brings another person into Felix's corner.
Mighty Mito — Fix It For Felix Tee
$35Wear the fight. Stand in Felix’s corner. The Mighty Mito Tee was created to raise awareness for Felix and his fight with COX20-related mitochondrial disease—an ultra-rare genetic condition with fewer than 40 cases documented in medical literature. The front features our Mighty Mito character for mitochondrial disease awareness. Proceeds from every shirt support Felix and his family. Details * Unisex fit * 100% combed and ring-spun cotton* * Soft, lightweight feel * Pre-shrunk fabric * Front + back print * Designed for Fight for Felix Wear it for Felix. Share his story. Help put more people in his corner.
Proceeds from Fix It for Felix merchandise support Felix and his family.
One kid. A whole lot of people in his corner.
Fight for Felix
He didn't choose this fight. But he doesn't have to face it alone. Stand in Felix's corner today.